A nice visit

So, last night Elizabeth's boyfriend, Curtis, and his mom Angie came to visit us. THey stayed 2 hours. It was a very nice distraction for the both of us. Curtis, Angie and 2 of Curtis' friends will be going to Kings Island today. All four of them plan to stop in to visit us tomorrow.

Curtis and Elizabeth

in the garden/playground at RMH


We are just hanging out at Ronald McDonald House until Monday when Elizabeth will have her next procedure....a bronchoscopy/laryngoscopy under general anesthesia. That will be her 67th time under anesthesia. Dr. Cotton will be looking inside her airway to make sure the graft is still holding and he will be looking for any excess scar tissue. She has had trouble in the past with her airway healing too fast and overgrowing new tissue which then had to be removed with laser surgery. Hopefully that won't happen this time. The surgeons can't believe how well she is doing this time. Dr. Cotton says that Elizabeth still holds the record for the youngest LTP patient to ever be allowed to come out of sedation the day after surgery while still intubated when she was 3-1/2 years old. She had 2 ribs grafted into her airway when she was 3-1/2 and was intubated for 21 days! She was up, out of bed and in a little wagon just 3 days after surgery and we would pull the wagon around the ICU. A little later she was up walking around the unit. I have lots of pictures of that. I wish I had them with me so I could post them on here. I will do that when I get home.



Elizabeth in the lobby of RMH