Saturday, August 16, 2008

Back to school haircuts and more

okay, the computer is not cooperating. I can't get the pictures up.
I'll try again later.

Anyway, things are going good. Elizabeth started exercising. The airway seems to be working well, but she is still
getting sharp pains in her upper right chest. We need to find out what is causing this to happen. Might be nerve damage from a surgery in the past. She has had the same pain for over a year now.

Thursday, August 7, 2008

We're home!

She is doing better and was released from hospital after surgery yesterday. The pink membrane has grown over the rib. The only problem the docs see is some granulation tissue that formed. For now they don't think it will interfere with her breathing, but if it should grow more, she will notice some trouble breathing and we will make the trip back down to Cincinnati to have it removed. Dr. Cotton wants her to try jogging next week to see how the airway holds up with exertion. That makes me a little nervous, but that is why she had the surgery. She couldn't run or get winded before the surgery because the one wall of the trachea would collapse, so now it is supposed to stay strong and not collapse. We shall see.

Tuesday, August 5, 2008

Prayers for Wednesday

Bright and early tomorrow morning my mother Mary, Elizabeth and I will drive down to Cincinnati. Her surgery is scheduled for 3:00PM. We are praying for good news; that the pink membrane has grown over the rib graft and that the granulation and scar tissue is at a bare minimum. I'm a little worried because this morning she told me her throat feels a little swollen inside. Could be scar tissue building up. If that is the case, the surgeon will probably us laser surgery to remove some of the scar tissue and she will most likely have to spend the night (or 2 nights or 3).

Elizabeth has to be in Pre-op by 1:30pm, so we hope to arrive by 12:30 so we have time to visit her friend Anwar. Anwar is the girl from Kuwait that was having airway reconstruction surgery too. She will still be in I.C.U and we hope to be able to stop in to see how she is progressing.

I might not get a chance to post tomorrow, but I will be sure to post and update on Thursday.

Oh and prayers needed for Jack....he has poison ivy all over his arms, legs and face! He stayed the night at a friends house Sunday night and came home with poison ivy. He is miserable and will be going to the doctor this afternoon. The girls want him to stay away from them. I told him that his face better be cleared up in time for school pictures in September.

Saturday, August 2, 2008

Unique voice

Elizabeth is still doing well. Just waiting for Wednesday. I thought I would post on here about something Elizabeth wants to do someday. She loves her voice and it is very unique. She doesn't have any use of her vocal cords because they are both paralyzed and have actually hardened. They will never work. BUT she has learned to manipulate the tissue above the vocal cords and that is how she talks. The voice clinic in Cincinnati is amazed that she has good tone and can actually sing a scale. They said she is the only kid they have met that can do that. Most kids with her condition can talk in a low raspy voice with no range of tone.

SO the question is....does anyone know how to go about auditioning for voice-over work? She thinks it would be really cool to do a DIsney movie cartoon. It's just one of her dreams.